Day by Day: caring for my husband who has Parkinsons Disease

I need to journal my day to day experiences taking care of and living with my loving husband, Pete. Some days it is extremely difficult and I think , how can I get through this day! Then I speak a quiet prayer for patience, strength and grace and somehow I feel better and am able to cope.

Today was a much better day even though my shoulder and back are crying for relief from injuries incurred from lifting Pete when he fell on Sunday, and thoughout the day in and out of bed and on and off of the toilet. An aide came for four hours and I was able to take a hot bath and recline for a while before going grocery shopping. I felt much better. Then we went to a wine tasting at the resort that we are staying at, followed by some karoke! Complete strangers joined us in song and we had good conversation. Pete was very alert and seemed to enjoy the socializing. He volunteered to sing “Santa Baby” which we sang together!

Pete went to bed soon after we returned to our unit and did not put up any resistence to pill taking or anything else. We had a good day and he told me he loved me and thanked me for everything. This made me happy and I felt calm.

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